Healthcare Fundraising Consultant

We are seeking an experienced Healthcare Fundraising Consultant to develop and execute a diversified fundraising program dedicated to improving the lives of individuals and families affected by Barth syndrome, an ultra-rare disease affecting approximately 350 known individuals globally. We aim to raise funds to support scientific research, advance treatments and a cure, provide resources to affected families, and strengthen the global Barth syndrome community. The role combines strategic planning with hands-on execution across individual, corporate, institutional, government, and digital fundraising channels. Responsibilities Demonstrated fundraising experience within nonprofits, rare diseases, healthcare, medical research, patient advocacy, or other mission-driven organizations. Proven success securing funding from individuals, major donors, corporations, foundations, grantmakers, or government bodies. Experience managing crowdfunding, peer-to-peer, or digital fundraising campaigns through GoFundMe or similar platforms. Strong skills in grant research, proposal writing, donor communications, relationship management, and presentations. Ability to translate complex medical or scientific information into clear, credible, and compelling donor messaging. Resourceful and entrepreneurial approach to building support for a specialized cause with a small global patient population. Develop and execute a diversified fundraising strategy across individual giving, major gifts, corporate partnerships, grants, sponsorships, and crowdfunding. Identify, cultivate, and engage prospective donors, foundations, corporations, government funding bodies, and strategic partners. Create fundraising narratives, cases for support, proposals, presentations, sponsorship packages, and donor communications. Plan and manage digital fundraising campaigns through GoFundMe or similar fundraising platforms, email, social media, and other online channels. Build donor stewardship programs that strengthen relationships, encourage recurring giving, and improve retention. Establish fundraising targets, timelines, budgets, reporting processes, and performance metrics.

The consultant will develop and execute a diversified fundraising strategy across individual, corporate, and institutional channels to support scientific research and the Barth syndrome community. Responsibilities include managing digital campaigns, cultivating donor relationships, and establishing performance metrics and budgets.

Candidates must have demonstrated fundraising experience within nonprofits, rare diseases, or healthcare sectors. Strong skills in grant writing, donor engagement, and the ability to translate complex scientific information into compelling narratives are required.

Identified from the job description. Confirm important requirements above.

• Fundraising strategy
• Grant research
• Proposal writing
• Donor communications
• Relationship management
• Digital fundraising
• Crowdfunding
• Strategic planning
• Corporate partnerships
• Major gift solicitation
• Budget management
• Performance metrics
• Nonprofit management
• Patient advocacy
• Medical research communication
• Business Metrics
• Resourcefulness
• Relationship Management
• Reporting Processes
• Research
• Medical Research
• Strategic Planning
• Communication
• Communication Planning
• Fundraising
• Information Sciences
• Patient Advocacy
• Performance Metric
• Presentations
• Proposal Writing
• Scientific Studies
• Timelines

• Healthcare
• Consulting
• Marketing
• Science & Research
• Social Services
• Fundraising Consultant
• Fundraising Manager
• Public Relations Professionals
• Fundraising Managers

Minimum experience

5+ years

Posting language

English

Working hours

40 hours per week

Location requirements

Country, Canada